"God only gives you something you can handle," said 31-year-old Steve Dezember from his bed. He can't talk or move. He uses his eyes to stare at letters on a machine and it voices his words for him.
His wife, 29-year-old Hope Dezember, is sitting next to him holding his hand. "That's right. If He brings you to it. He'll bring you through it," she told HLN. "That's what we always say. It's always been, if we're together, we can do anything."
Together, the Atlanta, Georgia, couple have done a lot. When Steve was diagnosed with ALS, also known as Lou Gehrig's disease in 2011, it was a huge shock. Two days after he was diagnosed, he proposed to Hope, his girlfriend of six months.
Hope did not hesitate to marry him even though the diagnosis for ALS, a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, is usually grim. According to the ALS Association, the life expectancy of an ALS patient averages two to five years from the time of diagnosis.
With cases of ALS, patients can rapidly lose control of their muscles. They become unable to walk, move and even talk. A patient's mind is completely normal and alive, but they are trapped inside a body that they can't control.
ALS can be genetic or in Steve's case, sporadic, meaning that he did not inherit the disease, but it is more common in the U.S. Sporadic ALS account for 90 to 95 percent of all cases, according to the ALS Association.
Before Steve was completely unable to move, the Atlanta, Georgia, couple set out to experience as many of life's joys as they could. They painted their van and wrote their website, hopeforsteve.com, on the side. Then they drove across the country enjoying life and spreading awareness for ALS. They took pictures by the Pacific Ocean and the open roads in the middle of nowhere. They went to concerts and lived and loved.
Because Steve enjoys music so much, he and Hope attended the 2013 Wanee Festival in Floridawhere they were invited by musician Michael Franti to watch from behind the stage. It was even more special when he called them out onto the stage in front of a crowd of thousands of people.
Franti bonded with the couple and even came to visit Steve when he was in the hospital. He played his guitar next to Steve's bed.
Steve was also thrilled when he met Dave Matthews while he was on tour in Atlanta on Saturday. Matthews told Steve how honored he was that he came to see him.
The Dezembers know that one day they will have to say goodbye to each other, but they want people to know that ALS can strike anyone. They are selling T-shirts on their website to help raise awareness about ALS and to help pay for their medical bills.
They've also worked with H4S Films to create a documentary about their lives. It debuted in Atlanta on June 1, and they hope it will be shown across the country. You can watch a trailer for it here.
Steve ended the interview with HLN saying, "I love Hope and she is the best caregiver I could ever ask for." Two young people learning beyond their years what life, love and death is all about. Watch the video above to see more.